My Battle with mnd
Hi my name is Dawn and I am 54 years old and live in Cheshire with my husband, I have two sons, aged 30 and 28 who I am very proud of. I have had a severe disability following surgery to my spine in 2009. Following numerous appointments with Neurology and Neurosurgery Consultants to establish why I was continuing to deteriorate, I was diagnosed with MND in September 2016, I am sure you can imagine this was devastating and turned my family and friends lives upside down, prior to my diagnosis I was an active, independent vibrant full of life woman who has always worked and loved my home, interior design, DIY, gardening and cooking, I enjoyed flower arranging and was always busy and active, but now have limited mobility and need a lot of care which I struggle with daily.
This disease is so cruel as it takes a little parts of your identity all the time leaving you exhausted and vulnerable and without the support of my wonderful husband and my two special boys. I would not be able to cope. People try to understand, but it is the impossible as it is so very debilitating, I get frustrated as there is so very little help and MND is incurable with nothing on the horizon for a cure and not enough charity work done to raise funding
I may have this through genetics, as I never knew my real father as I was adopted when I was 12 months old and I will not know until I have a genealogy tests in January. I wanted to share my story to see if there are any other people out there suffering daily like me.
My family and friends all say I am the bravest person they have ever known, I don't feel so brave and wish more than anything in the world that I could change my situation
Written by Dawn Johnson